Because I'm silly, I thought I could write about our tragic family situation last week AND tell you about some progress we've made with Lad. Plus the updates to my gut issues. About 4,000 words later I realized, I had to move SOMETHING to the next post.
So here we are with UPDATES:
I was supposed to see a new GI, but couldn't get in until April. What now? I really wanted things sorted out before Coach and I fly to Ireland March 22nd. I called Feb 23rd and they had a cancellation for the next day at 1:00. We'd hoped to leave the house to see Mini at 1:00, but I figured I better jump on that appointment.
This GI doc, a woman, is wonderful. She listened. Asked if I had a rash anywhere - WELL, YES I DO, THANKS FOR ASKING. AREN'T YOU DETAIL ORIENTED? I have a rash under my bra line, along my front-side. It itches in the winter. She is gonna test me for SIBO and Refractory Celiac, but they are scheduling far out (not a 60's reference, just a commentary on how booked they are).
The SIBO (small intestine bacteria overgrowth - sounds lovely) test involves breathing in a tube. The doc ordered a ton of bloodwork too. That part stunk, because I had to wait an hour until they could stick me with a needle. I thought they were gonna bleed me dry. I wondered why they hadn't had me breathe in this tube at the same time. I didn't ask questions - I rushed home to grab Coach and drive to Notre Dame.
Well, the hospital called on Monday to schedule my
breathalyzer breathing in a tube or a bag test. Turns out I cannot eat probiotics for 2 weeks before the test. I cannot take the acid reducer that I just started - a thing that I think helps me, for 2 weeks prior to the test. The test lasts 3 HOURS. That's a lot of breathing.
The real clincher: If I've taken an antibiotic recently . . . um, haven't finished the one for my kangaroo-pouch-inducing sinus infection, then I have to wait 4WEEKS till I can schedule. Ouch. That sucks. I haven't been on an antibiotic in ages. What are the chances? So much for getting it done before Ireland.
I contemplated pushing the test back till mid-April vs April 5th, because I will be in Ireland and unable to eat yogurt (a huge/easy go-to for me when I'm hungry and other countries usually have this available) and unable to take the anti-acid pill. I really don't want to wait any longer, so I'm gonna have to find something else to eat over there. Fingers crossed.
I need an endoscopy to figure out if I have refractory celiac, which only impacts like 1.5% of celiac sufferers. What on earth? I hate celiac, but could it be that I'm really celiac's bitch and have this refractory version? I can't get the endoscopy done till early June.
Or is it plain and simple irritable bowel syndrome? But I don't know that IBS would include weight loss.
I reached out to Aunt Leprechaun a few weeks ago to let her know I was baling on the GI who she recommended years ago. She supported me leaving the GI, but wasn't surprised having heard he'd gotten popular and then was less attentive.
I told her that my family practice doc asked me if I had any stress going on. Well, duh. But that's always the case. Things ebb and flow. Life is like that.
I've never told anyone on my side about the dark days we survived when Lad got mad at us (mischaracterizing what happened. He was struggling with boundaries and stuff). He stopped living here and stopped having any positive communication with us. I shared a shortened version with Leprechaun, saying that while he's doing SO much better than he was right after graduation in '20, we're still wanting him to be more considerate, etc.
Her perspective: She believes firmly this is Lad's ADHD. He no longer takes meds. She's done loads of research. Gave am ADHD talk and didn't want to look unprepared, so she overprepared. She sent Coach and I a bunch of articles. One in particular hit home.
It's not like we can just say YO, LAD - TAKE YOUR MEDS AGAIN, but we had a conversation with him. It went REALLY well. We said things like THIS ISN'T YOUR FAULT. And ADD COMES WITH EXTRA BAGGAGE - AND YOURS MIGHT BE ANXIETY. We've urged him to go to a doc and get some meds. He's not a fan. I was like LOTS OF DIFFERENT OPTIONS. IT MIGHT TAKE SOME TIME TO FIGURE OUT WHICH ONE AGREES WITH YOU.
This feels like a shift. He forgets stuff/leaves stuff around/doesn't do things in a timely manner, and I'm feeling less (not completely) irritated by it. Not like I forgot he had ADD, (he's not hyper) but it really impacts life outside the classroom, which has not been our mindset. As a kid, his doc said he only needed meds on school days - not weekend, etc. He took meds while in college, but he's an adult. This article was eye opening for us. Baby steps.
A few other things on our plate at the moment, but we hope to continue to nudge him towards seeing a doc who might help.
I'll update you on my Texas weekend soon. On my flight I rewrote this post in my exhausted brain, but since it's 11 pm Sunday and I babysit in the am - last week's draft it is (that's why I drafted it last week, after all).
I know it'll shock you: I HAVE LOTS TO SAY. While the situation is heart breaking, I met Uncle's neighbors. News flash: don't be surprised if we sell our house and move to this Texas neighborhood where the people are DEVOTED to one another. It's heart warming. I can't wait to elaborate. Plus a grandma cuter than Betty White, who I considered sticking in my back pocket to bring home. Her quotes will kill you dead.
For now, I'm happy to be home where there are no cats (allergies are real, friends) and where the GF possibilities are endless and abundant. Even if I did come home to a messy kitchen with a dishwasher that wasn't loaded. Heads will roll. HEADS WILL ROLL. *Coach was teaching in New Orleans so he's off the hook.
|American Airlines for the win: they offered|
pretzels and I asked if they had anything GF.
It is the year 2023 and American gave me not 1,
but 2 packages of GF/vegan cookies. Day made.
Freakishly Coach landed at O'Hare 40 minutes before me. He was waiting at my gate when I de-planed. We shared a cab home together, which was like a date. A pathetic date, but hey- both out of town? We'll take 27 minutes chatting in the backseat of a car together. Funny how the backseat of a car used to equate to a different kind of date. Less conversation and more kissing.
Who else remembers when you could walk to someone's gate and wait for them? (when you didn't have your own flight). It's Monday, go ahead and kick the week off with a bang - any good backseat date stories? Guesses on my gut issue?