I've contemplated sharing this, but hesitated. After my weekend, I've decided it's time. I'll try to be as gentle as possible.
I have celiac disease and I'm VERY careful. Occasionally I get cross contamination and I feel 'wired', unable to sleep. This is why, for example, I no longer eat GF pizza from a pizza place. Flour abounds in these places and my poor GF pizza is unable to defend itself. I like to eat out at non-pizza places, but it makes me nervous having less control.
For years, I've had an issue that my GI doc, Dr. S, cannot pinpoint.
Indelicate warning: (or should it be gentle warning about an indelicate topic. I might be overthinking this) I sometimes feel waste 'turning' in my pipes, waking me in the middle of the night. Sleep eludes me afterwards for a while or for the rest of the night. There's no immediate need to use the bathroom. 'Something' taveling through my pipes can just lead to pain IN THE SAME SPOT, but with no rhyme or reason. This pain is not limited to the middle of the night, but it's more irritating then. I obviously eat every day. Why is this an issue some days and not others? It's NOT gluten. It's a mystery.
There, I said it. And we all survived, right? Hoping I don't lose your readership for being so graphic.
As you can imagine, my offspring LOVE to tease me about my 'turning' issues. Let the mocking ensue: "Oh, wait. I feel something turning. I can't sleep."
Rest assured, my pipes might be messed up,
but thankfully my skin is super thick.
Dr. S, did a colonscopy in Oct of '18 or '19 (how can I not remember such fun?), one of many that I've had over the years. In my early 20's, I had my first colonscopy. Dr. R, a sweet little old man and my first GI, should've been looking at the angle presented by an endoscopy vs where-the-sun-don't-shine end. He went up my chimney instead of down my chimney, so to speak. Wrong angle, dude. My celiac disease went undiagnosed as a result for YEARS. Enter hair loss, pinkies so painful they're a useless hinderance (might not be due to celiac, but joint issues is one of the results of undiagnosed celiac).
After my '18-ish colonscopy, Dr. S: I found nothing. All looks fine. Maybe it's just scar tissue.
Me, in my troubled brain: Scar tissue? From what exactly? I retired from my work as a knife-swallowing, circus worker years ago.
|A guy I sit for trying on Elmo|
last week. I feel this post
calls for some cute photos.
I was dumbfounded. I assumed this low-left, painful spot would showSOMETHING.
June of '21, while in the hotel with the boys we planned to adopt, I had an issue that surpassed 'turning'. I was doubled over. Pain in the same spot followed by unpleasantness. Couldn't figure it out. 100% not gluten as I'd brought all of our food. I laid low, but recommited to getting answers.
Next stop: OBGYN. Was this pain in my side a female part? More tests. Ultrasounds, MRI, etc. Nothing found.
Diet: I changed my diet over the summer, sadly eliminating my beloved chocolate balls, my favorite granola-like crunchy snacks, and my GF frozen muffins (unless I want to test my new microwave). I decided this, with Ed's input/help, fearing that I might be eating too much fiber and sugar. I eat other things instead. Since then, my clothes are a little loose. Maybe this is a result from eating less sugar. I promise I'm not starving myself or even dieting. I still workout daily. Also, I haven't had the 'turning' pain in a long time
Welcome to Hell: Friday night Coach and I ate out with friends. We both had a rice bowl/salad thing. It was delicious and labeled GF on the menu.
Satruday night I ate a GF Rocky Road Fudge bar from the freezer just before bed. I also have gluten RR bars in the freezer, but I labeled those bins clearly. I can smell the different flour on the GF versions. Could I have made a mistake? Anything is possible, but I don't think so.
Sunday, I woke up at 2 am. Felt nauseous. Gassy. Using the bathroom helped and I went back to sleep eventually. In the morning, I ate oatmeal but curled up in my bed for a few hours.
I texted Mini: let me know when you're awake.
I'd been thinking all week that I might drive to ND to visit her. The weather looked mild. Basketball season hasn't started yet. My gut felt a little uncomfortable, but I thought I'd continue to feel better.
Mini said she had things to do, but she had time for a visit.
I got out of bed, still a bit uncomfortable. Went for a run. Yes, I'm crazy. I only did 2 miles. Mini and I were going to walk around the lake at ND. My mindset: movement would help move things through my system. I drove to ND, happy to experience relief anytime I eliminated some gas. I know you're all sad you weren't in my car for that hour 45 minute gas-eliminating drive. Also, I had no appetite.
We had a nice visit. After dinner, where I ate very little, I drove home. I felt OK, still not 100%. At home, I spirled downward.
I sat in the kitchen, hunched over my laptop, updating my microwave post while groaning. Reg wanted to play Smart Ass, a trivia board game. I took a pass, but almost every time he read a question in the adjacent family room, I croaked out a correct answer. Boom-ya.
|Mini's roomate's grandma made|
this pillow. Hmm. I wonder if I
could make something similar
for Mini and surprise
her for Christmas.
I ended up puking as I was going to bed - almost 24 hours since the onset. The other end, began at 2 am. I called Dr. S's on call number at 7 am. He didn't respond for an hour and a half, by that time I'd already driven myself to the ER and was on an IV with pain meds/fluids.
The CT scan didn't show diverticulitis.
WHAT? I thought I'd get answers. The pain in my pipes? Diverticuli flare ups? Maybe they heal over by the time the colonoscopy happened, but the doc says it should still show up on the CT scan. I assumed this nightmare was the culmination of all of it. Right? Wrong. According to the docs, I either ate gluten or I had a stomach bug.
|Jello - the only great thing |
about feeling ill. Am I right? Bring
the sugar for this speical occasion.
It's good news to NOT have divertiulitis, don't get me wrong, but I was ready for answers. I bought some liquid IV on the way home. Lad left work and bought me GF bagels and chicken broth, so I could have it with rice and pretend I was having soup like most people who've been sick. I couldn't eat my normal high fiber diet.
I slept 3 hours in the afternoon. Then I spiked a 100.6 fever. My instructions from the ER: seek medical attention if you have a fever over 100.4. I called Dr. S. He told me to take tylenol and alert him if my fever got worse. He mentioned that they were seeing a lot of ecoli. Huh? That's from food though, I didn't think I'd eated any bad food. Coach and I ate the same thing at the resaurant on Friday.
Fever does not indicate gluten ingesting, right? Dr. S offered bloodwork to see if I'd eaten gluten. Can you tell, I REALLY don't want to be responsible for this mess. I have to believe I didn't eat gluten. I've never had such a violent gluten reaction. *More on this later.
BTW I'm SUPER grateful for the timing. 1) We weren't out of town, tailgating or visiting college kids or being at travel ball in Atlanta, etc. 2) The worst of it waited until AFTER my drive home from seeing Mini. I can't imagine trying to manage this awfulness while away from home.
Do you have weird ailments that your people tease you about? Ever have a doc look at something from the wrong angle? Have you gone with a 3rd or 4th opinion to get an answer? Do you love Jello? Can you recommend a good GF food for after being ill? (soups, etc.) Have you ever been stuck out of town or some other bad timing when a similar incident occurred?